Welcome

Madeleine was born on July 1st, 2008 with an extremely rare skin disorder called Congenital Pigmented Nevus (CPN). She has one Giant Nevus on her lower back and hundreds of smaller ones covering her body. The data is incomplete, but for now approximately 1 in 400,000 children are born with CPN.

My Surgery was a success!!

With all the amazing support from everyone, we were able to get the procedure I needed! I am still healing from the surgery and will be for awhile, but the good thing is that it's gone!

My family cannot express our gratitude enough for helping us get through this. It's truely a blessing how everyone came together for me. We will keep updating the news section as I progress.

We Thank You!

If you have any questions, you can contact us at maddienevusfund@gmail.com